How the group works

The group is run entirely by volunteers, with the minimum of administration. We all have ME or fibromyalgia, so minimising the load on the organisers is important! There are no membership fees so there are no finances to manage either.

To join the group you must have either ME or its cousin, fibromyalgia. This also covers diagnoses of Chronic Fatigue Syndrome (CFS). You may have been diagnosed by your GP, or by a specialist, or you may have self-diagnosed on the basis of your symptoms. Get in touch by filling in the form on the Contact page and we will get back to you.

We ask members to participate in the group regularly, so far as their health allows. That means attending meet-ups if that’s possible for you, or keeping in touch via the Facebook page (hopefully both). We’re not strict about this – if we don’t hear from you or see you for a few months we will get in touch to see if you want to continue, and only discontinue your membership if you don’t respond or don’t want to continue. There’s no problem dropping out for a while: just let us know if you want to do that, and get in touch whenever you want to rejoin.

We do reserve the right to deny membership to someone if we think this is in the best interests of the group as a whole, but this is a last resort and we will avoid it if we can.

The group is run by a coordinator, with support from a co-coordinator. They have ME themselves. We will always try to respond to communications as quickly as we can, but if it takes a day or two please be patient!