National organisations
If you haven’t already run across it, the ME Association has an excellent website rich in useful information for sufferers.
There are a number of other national and international organisations dedicated to furthering the cause of decent treatment for ME sufferers:
ME Action is a sufferer-led advocacy group that campaigns for better health and social security services for people with ME. Its local groups are an effective means of connecting with others and supporting its activities.
Action for ME is a UK-based charity providing support and advice and funding for biomedical research.
All three organisations provide telephone support and advice services, with details on their websites.
Local and regional support groups
Cambridgeshire Rural ME Support Group, CrMEtea
Sue Jones
http://crmetea.org/
PETERBOROUGH ME SUPPORT GROUP
John and Marian Dunham
18 Nursery Gardens
Whittlesey
Peterborough
PE17 1TE
Tel: 01733 203 480
pboromesg@ntlworld.com
BEDFORDSHIRE ME SUPPORT GROUP
Co-ordinator Dr John Chisholm
Email: bedsmesg@gmail.com
Website: http://bedsme.blogspot.co.uk
Tel: 01525 750 078
BURY ST EDMUNDS M.E. Support Group
Monthly meetings on third Thursday at Nowton Court, Nowton,
Bury St Edmunds IP29 5LU. House groups and coffee mornings
covering Suffolk, Norfolk and Cambridge borders.
Affiliations: Community Action Suffolk; Cambridge Invisible Illnesses
Telephone: 07974 826467
Email: mariamunn@mypostoffice.co.uk
Facebook: ‘Roses for M.E.’
From outside our area?
Other local groups across the UK are listed on the ME Association website where you can do a postcode search and find the nearest ones to you.
Chronic Living Therapy
A therapy directory listing therapists who understand the knock-on impacts (emotional, social) of being chronically ill and help you to manage and cope with that. They also understand that stigma and gaslighting that many patients with ME or Long Covid are subject to.
Browse the directory and contact a counsellor – online and phone appointments are often offered when you don’t live close enough or can’t get to an in-person appointment due to your health.
Cambridge M.E. and L.C. Support Group, CBME 