Three items from the past week for people with ME and Long Covid, and those who care for them.
Ask your MP to attend the ME Big Survey launch on 25 November
More than 5,000 people with ME answered Action for ME’s 2026 Big Survey. The charity will present the findings at an event in Parliament on Wednesday 25 November, hosted by the All-Party Parliamentary Group (APPG) on ME, and is asking supporters to invite their MP. Its online tool writes the letter for you, so it only takes a few minutes. The full report comes out on 26 November, with a public webinar the same day.
Find out more and write to your MP (Action for ME)
UK ME/CFS Biobank joins a major European research project
The UK ME/CFS Biobank, run by the CureME team at the London School of Hygiene and Tropical Medicine, is joining DISCOVER-ME, a research project funded by the European Union’s Horizon Europe programme. The project will look at what goes wrong in the body in ME, and at better ways to diagnose and treat it. Samples and health information given by people with ME in the UK will be part of it.
Progress on a UK study of viruses in ME and Long Covid
The CureME team is studying herpes viruses, including HHV-6 (human herpesvirus 6) and Epstein-Barr virus, and how the immune system responds to them in people with ME and Long Covid. Sample collection for the main parts of the study is finished or nearly finished, and lab analysis is under way. There are no results yet.
This round-up was put together for CBME with the help of Claude, an AI assistant. We share news for information only; it isn’t medical advice. Please follow the links for full details.
